tag:blogger.com,1999:blog-4077635557105576899.post3543946468460556683..comments2023-08-03T02:13:52.577-07:00Comments on My Life As A Pancreas: Ya know what ELSE I hate about diabetes?Stephaniehttp://www.blogger.com/profile/05703099150939801754noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4077635557105576899.post-65132522824993483242011-11-20T13:21:17.774-07:002011-11-20T13:21:17.774-07:00Same-same here! After Bean's appointment Thur...Same-same here! After Bean's appointment Thursday we've had some odd numbers and it's pretty much up to me to try this and that until they get back to 'normal' (ha, what the hell is that?!?) <br />It is very scary, frustrating, ridiculous that those who spent years and lots of money to figure all of this out can only offer suggestions. I appreciate that they are there, don't get me wrong; but sometimes I wish they could just say 'do this' and it would work!Denise aka Mom of Beanhttps://www.blogger.com/profile/05726979027850619807noreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-73659590628835744102011-11-18T15:36:18.758-07:002011-11-18T15:36:18.758-07:00oh man, when L first said she wished she didn'...oh man, when L first said she wished she didn't have it, it was so heartbreaking, because as a parent, you want to do everything you can to keep them from getting hurt and being upset, and this is something none of us had any control over. sigh.<br /><br />just know that we're all out here, feeling the same way.shannonhttps://www.blogger.com/profile/08895190983814591749noreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-18952776933273001362011-11-18T08:52:37.226-07:002011-11-18T08:52:37.226-07:00For me, it is helpful to think of other struggles ...For me, it is helpful to think of other struggles that children and their parents go through and recognize that D is MY son's struggle but there are many others that don't have quick fixes and really wear on kids' emotions too. I have a friend who's son has autism and dyslexia. There are no quick fixes for these. There is no plan - do x and y will happen. And her son is only 9 and has wished that he was never born. That is heartbreaking. I guess my point is that it can be easy to see 'everyone else' as being normal and having no problems like my child has to deal with. But that's not true. It makes me feel less alone to know that very few (if any) have a perfect life with no struggle or heartbreak to deal with and that makes me feel less alone. <br /><br />My only suggestion on the tubing problems is that my son uses Tallygear.com pump belts. Everything is kept very secure around his waist and under his shirt. We have been fortunate to have almost no problems with pulled tubing.Becky Vhttps://www.blogger.com/profile/10440780887445338114noreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-32841736031559575362011-11-16T22:44:04.191-07:002011-11-16T22:44:04.191-07:00i hear ya...the never-ending road gets to me a lot...i hear ya...the never-ending road gets to me a lot...a lot lot...it's beyond hard to deal with sometimes. HUGSsky0138https://www.blogger.com/profile/02085600646732450220noreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-54764547666039367532011-11-16T19:29:50.994-07:002011-11-16T19:29:50.994-07:00At least we're good at being experts. We'v...At least we're good at being experts. We've all had a lot of practice. It's never easy having to make the calls, but better us than someone who doesn't know our kid and how he deals with diabetes. Our kids are so lucky to have us. Because all the d-moms are a real dedicated bunch. I'm sure your love is so evident to him. Hope things look up soon.Roseladyhttp://diapeepees.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-51115798041443374042011-11-16T19:01:09.309-07:002011-11-16T19:01:09.309-07:00yeah... same.
That's all I got.yeah... same.<br /><br />That's all I got.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-17905225873055222872011-11-16T18:48:11.529-07:002011-11-16T18:48:11.529-07:00It's also so hard to explain this to people wh...It's also so hard to explain this to people who aren't parents of a CWD or a PWD. They just don't really understand the random and unpredictable disease that diabetes can be and how you are constantly thinking and planning for it. It's so hard to teach others about your child because part of what you do is learned only from experience and intuition. Great post- thanks for putting it out there!Julienoreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-17687767523509423412011-11-16T18:42:33.325-07:002011-11-16T18:42:33.325-07:00There used to be a clip you could attach to the ba...There used to be a clip you could attach to the back of the Animas pump where you could wind the tubing around it so there would be very little slack but you could not wear the clip as well and would have to wear a waist it. It's either wind up the tubing or use the clip either/or. Since the Omni Pod is not a great deal of money upfront, you could maybe try the pod and insurance will just pay for the Pod supplies. You can always go back to the Ping if you want to. It's his body; should be his choice. He is having too many problems with the tubing. It's possible insurance will cover the pod pump itself if your endo documents he is having problems with the tubing and orders it as a matter of medical necessity. If sites keep falling out, leading to high blood sugars, it is. Good luck. Sounds to me like the pod is going to be a better fit for you guys.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4077635557105576899.post-6929065478594788452011-11-16T18:31:31.808-07:002011-11-16T18:31:31.808-07:00I hear you loud and clear. I have been struggling...I hear you loud and clear. I have been struggling with the idea that the hospital was our 'safety net', that they knew more about R's care than we did....and seriously when it dawned on me that we were ALONE...practically... it was a heavy burden.<br />Also, I totally know what you mean about liking a clear plan, and that is NOT diabetes. There isnt a formula that works each and every time. Hope a pump change is a success for you. BIG HUGS xx.Juleshttps://www.blogger.com/profile/15199571808950027287noreply@blogger.com