Sunday, June 24, 2012

So proud!

So, I know I'm kind of biased, but hey...this is my blog, so I'm allowed to be proud of my 6 year-old. :)

On Saturday, Adam had a play date with a friend from kindergarten. We've had his little buddy over quite a few times, but this was the very first time he was going to his friend's house to play. And admittedly, I don't know the mom *that* well, but we've had quite a few great conversations and she was so open to learning about what she needed to do for Adam to hang out over there. I had a good feeling about it, so I dropped him off and gave a few instructions and I am proud to say that it went so well!

We have his Dexcom in this week, so that helped. :) When I dropped him off, his BG was 195, and I was good with that, because I knew they were going to do the slip-n-slide in the backyard. I got one text from the mom about an hour and a half into it, and she said that he was 209 and they were having snacks. I didn't ask what they were eating...but I knew Adam was going to be just fine. She texted me again and said that Adam asked for the carb counts for everything they ate and bolused himself for everything! She was impressed he knew so much. :) When I looked at his PDM, I saw there were 3 boluses...and he obviously did a great job because when he got home, his BG was 167.

I told him how I was so proud of him for doing such a great job and for knowing exactly what to do. And he looked at me and said, "Well, taught me how to do it....duh!!"

Well, I guess I did! I know we do this every day, but honestly at 6 years old, I do 95% of his care, because I don't want to burden him. But knowing that he is moving towards being able to care for himself? Amazing. Sad in a way that I feel like it is A LOT for a 6 year old to have to deal with, but I'm so proud that he can do it and doesn't seem to feel like it is a burden at this point.

I am enjoying having the Dexcom back - I think I will be using it more this summer. When it is working well, I notice we aren't having to test him as much and since we have been running out of our allotted 300 test strips each month, that is a blessing.

Last night we went on a night hike - scorpion hunting! It was so much fun (even though it was still blasted hot out!) and I didn't worry one bit since Adam had his Dex on. We saw lots of these little critters:

I am also loving the fact that our cat likes to catch scorpions. The other night I was on the couch and I saw Macy playing with...something...right by Jason's chair. I looked a bit closer and saw she was tangling with a scorpion! I told my barefoot husband to go get a big shoe...and we took care of it. Just a few "perks" of living in the desert, lol!

I am so proud of my boy. Sure, he drives me cuh-ray-zay sometimes, but in a way, having diabetes makes him a much more mature kid at times (AT TIMES...the kid can fart on command like nobody's business) I hope that I can keep a good balance for him of teaching him how to care for himself....while still letting him be a kid.

It's a hard balance, but at this point, I'm feeling good about it.

Tuesday, June 19, 2012

Our 1st Trip to the Water Park...

There are plenty of things that scare me about diabetes. But the day-to-day stuff? I can pretty much handle it. Except....

...for the water park.

I have been dreading this day for a long time. The day when we'd head to a water park for the day with friends and deal with a spastic enthusiastic 6 year-old AND diabetes. The last time we went to a water park was when Sydney was like 2 years old or something, and it was for a company event. I'm not a huge water park fan in general, but I knew the day was coming when they'd be old enough to want to go...and who am I to say no? :)

I actually felt sick to my stomach this morning. And really, I don't get too rattled about blood sugars anymore. I just had no idea what the day would turn out like. Would it be like last night? Adam swam in the late afternoon/evening, out of the pool his BG was 129, Jason took the kids out for ice cream, I did an extended bolus for 40 carbs, 2 hours later he was 129, 1 hour after that he was 160 and 1 hour after that he was 145. Take THAT swimming and ice cream!

Or would it be like last Friday when he had lunch, swam and one hour into it his BG was 44?

That's the problem. You just never know.

So today went well overall. I bought some of the Dex4 glucose drinks and I tucked one in the pocket of his swim trunks. That way if we were away from our stuff and he said he felt low, he could just down that real fast.

Adam had lunch before we left and when we got there his BG was 157. The level of excitement on his face led me to believe he'd be fairly spastic ENTHUSIASTIC in the wave pool. I suspended his insulin (he still had well over an hour's worth of IOB) and gave him a juice box.

I followed him into the wave pool and he was just ALL OVER THE PLACE. I must have looked like a maniac yelling, "ADAM, SLOW DOWN!" "ADAM, STOP FLAILING AROUND!" " it..." He's a good swimmer, but this was his first time in a wave pool, so I was worried about him drowning AND low blood sugar. :)

He was so crazy that when we got out of the wave pool and were waiting for our friends, I got them ice cream. I didn't bolus him because....hey...water park. I figured the fat would help keep some carbs in his system.

After about an hour of swimming, sliding and jumping across lily pads, I tested him and got a whopping 407. Whoops. Guess I screwed that one up. I started up his basal again at about 50% and let him swim some more.

Can you spot his pod??

Then I tested him again half an hour later...527. FUD. Apparently I overdid the carbs. But really....I'm thinking some of this was adrenaline because I really didn't give him THAT much extra. Weird.

So I bolused him up real good and we went on our merry way. Is it awful to say that I had more fun after that, because I knew he wasn't going to go low?

I have to share a funny story. Sydney was off with her friend and I was watching Adam jump across those lily pad things. I told him that I had to go to the bathroom, so he had to come with me. This is what he tells me,

"MOM. There are LIFEGUARDS here. If I'm low I will tell them. Go to the bathroom and when you come back you will see that I'm not dead."

Well, okie dokie then. 

At first I thought this was hilarious, but then I realized that it's actually kinda sad that he knows I worry something bad is going to happen just because he's swimming. Luckily, he said it in a joking way, and he really, truly had a BLAST today, which was the goal. Even though I was a bit freakish about it, I'm not going to tell him that he can't do anything because of dumb ol' diabetes.

On that note...I am TIRED. Like dog tired. I am thinking we will all sleep good tonight.

Unless all that activity decides to start catching up with him's almost bedtime and he's 117.

Tuesday, June 12, 2012

It's always there...

Lately it seems like I haven't complained much about diabetes on my blog. I really, really try not to make it the focus of our lives, but lately I'm finding the irritation and anxiety about it all creeping back in.

Adam's numbers haven't been so great since school got out and I'm not sure what it is....basal? Change in activity? Too much grazing? Just your basic unpredictability.

And I like predictability.

Which is pretty hilarious, since diabetes is the one disease that is anything BUT predictable, right?

I need to buckle down and do some logging. Some basal testing. Some changing of what goes in that kid's mouth. But I'm tired. I want a break. I don't want to think about it.

People ask if we want to go spend a day at the waterpark and they see me's not because I don't want to go...I do! But the WORK involved in keeping Adam safe there is just too exhausting to me to think about. I know he will have a blast, but he will resent my hovering, the juice-pushing, and constant finger-pricking.

It's not even just that....its EVERYTHING. I read Hallie's post yesterday and as I read it I kept thinking, "yes...yes...YES!" That is how I am feeling.

"Diabetes is like throwing a pebble into a pond.  The ripples go on and on and on...

And it's hard because most of the people who were in your life BEFORE don't see all those ripples.  They can't comprehend how those ripples end up touching every part of your life.

Those ripples push you out into the middle of the pond.  And it's lonely there. 

You had a life back on the shore but when you look back that seems like so long ago you really can't remember it.  And you're different now anyway."

There are so many things I'd love to do. School, perhaps a job, a vacation with my husband...things that before diabetes would not have been a problem. I mean, if the idea of planning for a waterpark visit makes me exhausted, how in the world would I do any of those other things?

I think a lot of people don't realize what a huge responsibility it is to be the parent of a child with diabetes. You are not only responsible for guiding, teaching and nurturing them into good people...but you have the added pressure of keeping them alive every single day.  And it's all up to you to make sure he goes into adulthood with a healthy body and able to go on the rest of his life taking care of himself.

I am blessed that I do have a wonderful circle of friends that understand (or most definitely try to understand) what we go through. Even two years into this, I have friends who will sometimes stop and say, "dang...this is a lot of work!" But as I was explaining how Adam's pump works in detail to a new-ish friend the other day...I just got tired. I didn't want to explain it anymore. After 2 years of it, I am done.

So while yes...things are going well, sometimes I start to wallow again and get really, really, really irritated by diabetes' presence in our lives. 

Sunday, June 10, 2012


Life is good...

Podding makes summer with diabetes just a bit easier...

There's time for relaxing and is my sweet 8 (almost 9!) year old girl. Her goal for the summer is for us to read the first 4 Harry Potter books together (I am the last avid reader on earth to read the series, I think!) She finished book one the other day and we watched the movie together as a family. She's moved on to book 2 (I catch up to her by reading at night after she is in bed. :)

I am so excited to hear about all of our D-friends heading to camp for the first time. I cannot wait until Adam is old enough to go and find that sense of understanding and community for himself. Just a few more years!

Summer is good.*

*Ask me again in mid-July, when it's 115 degrees out and my kids are bored beyond belief with no vacation in sight. I'll be the one in the corner, counting the days until school starts... :)